Category Archives: Cancer

I Am a Writer

Something I don’t write about much is my writing background. And of course there’s a reason for that. I have spent a significant amount of time, effort, and money over a period of many years on writing, and though I don’t consider any of that effort to be wasted, I do think sometimes, sometimes when the shadows fall a little too dark, a little too thick, that I should have done more with it, this writing thing, by now. That it should have gone somewhere. Perhaps I’m even a bit embarrassed to admit that with a BA in English and an MFA in creative writing, and years of study and teaching under my belt, I still haven’t published a novel.

Have I written a novel? Oh, yes. I wrote my first novel three decades ago. I was teaching English and became active in the National Writing Project, a fantastic program for teachers that encourages us to become writers, ourselves. I wrote a contemporary novel during that time but never attempted to have it published. It was my learning novel, the one that I would never throw away, but also, the one that wouldn’t be good enough to publish. Don’t ask me exactly how I came to this conclusion. I think I read an awful lot of books and articles about writing, and this was my take on first novels. They were like the first pancake, or the first kiss. You just had to do it and get it out of the way. The payoff would be better pancakes and better kisses later. Fluffier, more evenly browned, delicious. Or maybe my own writing just embarrassed me so much that I couldn’t even think of approaching anyone with it. So, I printed it out and boxed it away.

The itch to learn more and to focus more on writing took me to Goddard College next. I continued teaching and worked on my master’s from 2007-2009. During this exciting period, I wrote constantly, including many formal papers for my instructors and my thesis, which was a young adult historical fiction novel about a Catholic Polish teen and his Jewish neighbors during World War II. This one, I thought, I would try to get published. I just didn’t hurry it.

I attended Goddard West in Port Townsend, WA. I have never been to the original campus in Vermont, which has sadly, closed, but I still hope to visit there someday.

After the MFA, I focused on researching agents and publishers and writing queries. Admittedly, I didn’t try very hard. It was excruciating for me to put myself out there—my writing out there—which to me, amounted to putting my inexperience and inadequacy on full display, a neon sign of not-good-enough, flashy and annoying, just begging someone far more hard-working and talented than myself to squash it.

Time went by and I wrote with friends for fun, and to learn more. Shout out to you, Alicia, Lynn, Mike, Maria Elena, and of course all of my amazing students! I thought maybe I needed to put more time between me and my second novel. I started blogging. I was still teaching.

But then I found myself seriously ill with a rare form of cancer, and the world stopped spinning. I lost track of days, weeks. My brother was also ill and had come to live with us. My surgeries were successful. But I felt unwell. Months of chemo took a toll. And my brother. My beautiful brother, my only sibling, died.

I read that the average life span for appendiceal cancer was seven years, and yes, I also read that was not to be taken to mean that I would die in seven years—there were so many factors involved, and it was just an average. Many people died sooner. Others lived for twenty years or more. Blah, blah, blah, I thought. I have seven years.

With my husband’s blessing, I cashed in a small savings account and took a short trip to London and Paris (my one and only trip outside the U.S.), and it was wonderful, and I knew I wanted to write. My writing vision could not have been more clear. I came home and worked on a new novel.

East Finchley, Outside London.

A Beautiful Place to Write.

I taught for a couple more years. Other than my family, my teaching career was what I was most proud of and committed to. Still, I felt my energy shifting. I expected an early death. I imagined myself too weak to be the kind of teacher I had always aspired to be, which was the Robin Williams as John Keating kind of teacher from Dead Poet’s Society. That was who I should be, but instead, I felt—I believed, I was tired, in failing health, more Virginia Poe dying slowly of tuberculous while Edgar became ever more prolific than John Keating taking on the entire world of poetry and elevating young minds and spirits. I saw myself settling into an early writing retirement where my husband would continue to work, but I would just be . . . . the quiet writer in residence.

Robin William as the victorious Mr. Keating

The sadly beautiful Mrs. E. A. Poe

And so, I finished my third book. It is not published.

I found I missed gainful employment and have steadily worked part-time since my early retirement, teaching and library work mostly.  I am fighting my hermit-like tendencies, and I’m enjoying getting more involved in actively reading and responding to my fellow writers online, as well as the few writers I know personally. This is a joy and a responsibility. I believe we must support each other, and I am so in awe of all of you! I just finished reading a fellow Goddard graduate’s Sci-Fi thriller, The Regolith Temple, yesterday, and was blown away! Roxana Arama, I will be writing a review for your excellent book very soon!

I am still waiting to hear back from an agent who requested my full manuscript many months ago. I’m considering next steps.

I’m not dead. I stopped going in for cancer scans several years ago. I can’t afford them, and anyway, I’m quite spectacularly healthy. Weirdly! So maybe the seven years thing was really just about itches and actually had nothing to do with my diagnosis. Whatever the reason, I’m grateful, and I’m still in love with this beautiful planet. And pancakes and kisses.

I’m walking every day and working on another novel.

Trying to say it a little more often.

The simple sentence I’ve never felt worthy of.

I am a writer.

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Filed under Cancer, Cancer Journey, HIstorical Fiction, Identity, Literary Agents, London, Memories, Personal History, poetry, Relationship, Research, Teacher, Uncategorized, Voice, Writing, Writing Advice

Scanxiety

billyandloribabes

I belong to an appendix cancer support group, and one of the non-words I see quite often in posts is scanxiety, a condition related to the anxiety felt about medical scans that are given regularly for an indefinite amount of time after cancer treatment. In the beginning my scans were spaced three months apart; now they are six months apart. I’ve gotten good at coping with the anxiety nowadays (four years post diagnosis) most of the time, but when I get to the day before testing, as I have today, I find my mind casting away from anything productive.

My creativity is gone. I can’t concentrate on writing my novel or even reading someone else’s novel. I want to talk about it, but I don’t want to sound like a hypochondriac. I don’t want to seem negative. I don’t want to be told not to worry, everything will be fine. Even though I know it probably will be.

IMG_0679 This photo depicts my usual outlook on life, and was taken on my beloved mountain. This is not to say that I don’t love, love, love Wisconsin!

The thing is, I’ve never gotten over that initial out of nowhere diagnosis. I can only say that I feel vulnerable to invasion, or worse, that I feel like an unknowing host. I don’t understand cancer. There are so many different kinds of cancer, so many different treatments, so many different outcomes. Mine, Goblet Cell Adenocarcinoid Cancer of the Appendix, is supposed to be quite rare. It doesn’t seem so rare when I read the stories in my support group.

Sometimes I think I should drop out of the group; it reminds me daily of something I should not dwell upon. I believe in the power of positive thinking, and maybe reading the very real cancer stories, takes some of my shine away. But I also think that I should buck up—you know, be there for those who ask for a prayer or just need to vent and need to know someone out there really hears them.

I rarely participate in any length, usually just a word or two. Others in the group are much better at knowing what to say. Quite a few of them even offer up-to-the-minute cutting edge medical information, where the best hospitals are, how to connect with an appendix cancer specialist, the ins and outs of health insurance, tumor markers, treatment experiences—all sorts of really important information. I can’t help but feel I haven’t found a place of usefulness within the group.

And here I am tonight, inexplicably sad about the way that cancer changed my life and knowing I might be able to get some help from the group if I could just express myself without sounding like an infant. Most of the posts I read are written by or for those of us who are currently in the throes of the worst of the disease—those reeling and just diagnosed, those going in for their 2nd, or 3rd, or 4th surgery. Those who are in palliative care. The loved ones of those recently passed who write to break the news to the group.

And here I am feeling pretty darn good. I am one of the lucky ones. Makes me feel like a phony just wallowing in a selfish bout of survival guilt. And yet. And yet I am sad. Sad that my life changed so drastically since my initial appendicitis attack. The appendicitis that turned out to be hiding cancer.

Four years ago I was a teacher living on a mountain, surrounded by family, friends, students, colleagues, and neighbors that I loved. My four grandchildren all lived within a few miles of me.

That is not to say that my life is not good today, but it has changed dramatically. I miss my old life. I miss my kids. The circumstances of my life after cancer and my second surgery have impacted almost every aspect of my personal life and my career. Not all of it is bad, but some of it is. I’m not going to lie.

Paris to home 2013 085

Sometimes survival calls for sacrifice, or at least that’s the way I’ve come to wrap my mind around it. Maybe it’s nothing as noble sounding as that. Maybe I just got lazy. Teaching, one of my great passions, had always required great energy, energy that I no longer seemed able to summon. I was eligible for retirement. My husband needed work and found a good position in another state. My tumor marker tests showed increasing evidence of cancer at the cellular level, yet my scans were clear.

I’m not sure what tipped the scale and brought us to this new place. Maybe it was down deep merely an urge to run, something I’d done plenty of times in my earlier years. Grief over my brother’s death, financial hardship, chemo-brain, depression, debilitating chronic health issues, fear of recurrence…all of these things and more must have played a part. I only know for sure that the world changed after my diagnosis.

That’s the thing about cancer. It sneaks up on you. I had no idea that I had cancer until I went in for my post-operative check after my appendicitis surgery. And that’s probably the root of my malaise. If I didn’t know I had it then…

Scanxiety.

I’m grateful for what I have; I still have love and family, however far away some of my loved ones are, and I will be forever grateful for what I have had. Nothing can take that away.

Mahalo.GrandmaJazz

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Filed under Cancer, Cancer Journey, Patient Advice and Support, Support Groups, Teacher, Writing